Patientslikeme the founding story

Knopf received an undergraduate degree in mechanical engineering from the Massachusetts Institute of Technology and his medical degree from the University of California, San Francisco School of Medicine. As chair of PatientsLikeMe, Jamie provides the scientific vision and architecture for its patient-centered medical platform.

Providing the privacy and intimacy the group required also meant that the platform owners who were themselves cancer survivors needed to let go of some control, and allow entirely private groups to flourish outside their control but within their platform.

Advisory Board

He is internationally known for expertise in clinical and translational research directed against signal transduction pathways in melanoma. This is particularly true for those who start, run, and curate these communities. Many staff view online interactions in general, and social media in particular, with suspicion.

For example, users of an online community for cancer survivors wanted to set up closed groups within the wider community when particular members were approaching death. Context collapse—the online phenomenon that happens when online exchanges lay bare all kinds of previously hidden personal and professional information about staff and patients —exacerbates these organizational anxieties.

At their best, these individuals also reach out and build relationships with influential clinicians, as in the case of Findacurean online community focused on rare diseases that grew out of a collaboration between a father whose sons were born with the genetic disorder alkaptonuria and a physician dedicated to supporting the development of treatments for small patient populations.

Understanding that scale is a bug, not a feature Anyone who builds a new online community or app dreams of scaling. He was commissioner of the U. With a summa cum laude undergraduate degree from Tufts University, Dr. Rather, it is essential for allowing participants to maintain intimacy, follow their own interests, and deal with internal disagreements.

This tension between the market economies of the entrepreneurial world and the gift economies of community life reflects a deep problem: The social aspects of digital technologies are empowering patients while professionals and traditional health care providers remain constrained by their need to deliver complex patterns of care with little tolerance of error in high-risk clinical situations.

This helps keep groups small and focused on issues relevant to the current members, while simultaneously reducing return on investment for platform owners and investors.

A native of Cambridge, England, Dr. Online health communities have significant potential to realize new forms of social capital for patients and health services in terms of support, solidarity, knowledge, and innovation.

The audience is smaller, it actively maintains its privacy, and selling stuff to people who are sick is more complicated than selling to healthy consumers. This is why digital technology in general is a potent leveller of social and institutional hierarchies, and why over time the functionality available to citizens is likely to surpass that available for health care providers across many fronts, including information access, personal biosensors, and digital diagnostic tools.

Individual clinicians can learn how patients experience their disease and care: For those in positions of power, the current great white hope for resolving these dilemmas is big data and machine learning, which reinforce centralized power.

She is also an investigator and chair of the Safety Committee for the national multicenter ISPY2 trial, and is the principal investigator of a number of clinical trials. First, the winner-takes-all advertising model of Facebook does not apply to online health communities, where the ability to scale is antithetical to the need for privacy and relatively intimate communities.

The Emerging World of Online Health Communities

He has written more than 30 articles and papers about the future of medicine and how the web is changing health care for the British Medical Journal, The Lancet, The Guardian, and The Independent. These benefits accrue more quickly to individuals than they do to organizations.

A University of Pennsylvania study shows that large networks actually deliver lower levels of social integration and knowledge transfer than smaller ones.

He has served on the program committee for the annual meetings of the American Urological Association as well as for the American Society of Clinical Oncology Petrylak is involved in clinical trials research on a local, national, and international level.

This happens for several reasons: Over the last 10 years, these technologies have led to a set of significant patient-led innovations, shaped and enabled by shifts in digital technology, including:Paul Hodgkin is the founder and chair of Care was a general practitioner for 25 years, before founding and leading Care Opinion for its first nine years.

He has written more than 30 articles and papers about the future of medicine and how the web is changing health care for the British Medical Journal, The Lancet, The Guardian, and.

Cancer Commons is a collaboration of leading cancer scientists and clinicians with proactive cancer patients, aimed at leveraging the collective knowledge and resources of the entire Cancer Community. The core group advancing the health Rosetta.

We deeply rely on the broader ecosystem.

Patientslikeme the founding story
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